Sunday, September 28, 2008
PKD awareness week

PKD (Poly Cystic Kidney Disease) afflicts over 600,000 Americans and well over 12 million people world wide. It's a disease my family and I know about only too well. But for those who suffer from this disease we got some very welcome new earlier in the month. The Senate passed a sense of awareness "
PKD Awareness Week Bill". September 14-20, 2008 are the dates. This is a big move for PKD because it took years to get this accomplished. It's a step to get law makers to understand and fund more money for research to cure this disease.
In addition, after 13 years Congress passed the GINA bill (Genetic Information Non-Discrimination Act ) which gives privacy to individuals who have genetic diseases and can not be discriminated by insurance companies or employers due to their health issues.
Labels: legislation, nonprofit
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